The Users’ Perspective: What Integrated Care should look like
At the International Conference on Integrated Care 2014, Robert Johnstone, Trustee of the International Alliance of Patients’ Organisations, gave a talk titled "The Users’ Perspective: What Integrated Care should look like". Having had chronic rheumatoid arthritis since the age of three, he shared his personal story of moving away from being “a very passive recipient of care” to becoming "a self-managing patient”. When he was about fourteen years old, he told his rheumatologist that eating acidic food seemed to make his pain worse. The rheumatologist replied that this was not possible, so because he trusted his doctor he kept eating acidic food and feeling pain. Later in his life, he progressively learned to listen to his own body and to work out what was good and what was bad for him. He gradually reduced his use of medications until he stopped taking them completely while using complementary therapies and focusing ...