Codesigning person-centred quality indicators with diverse communities: A qualitative patient engagement study

Effective engagement of underrepresented communities in health research and policy remains a challenge due to barriers that hinder participation. Our study had two objectives: (1) identify themes of person-centred care (PCC) from perspectives of diverse patients/caregivers that would inform the development of person-centred quality indicators (PC-QIs) for evaluating the quality of PCC and initiatives to improve PCC and (2) explore innovative participatory approaches to engage ethnocultural communities in qualitative research. Incorporating patient and community voices requires addressing issues related to equity and understanding barriers to effective and meaningful engagement.

What constitutes ‘good’ home care for people with dementia? An investigation of the views of home care service recipients and providers

Our objective was to explore what people receiving and providing care consider to be ‘good’ in-home care for people living with dementia.

Consensus was reached across all groups on five themes considered as important for good in-home dementia care: 1) Home care workers’ understanding of dementia and its impact; 2) Home care workers’ demonstrating person-centred care and empathy in their care relationship with their client; 3) Good relationships and communication between care worker, person with dementia and family carers; 4) Home care workers’ knowing positive practical strategies for changed behaviours; 5) Effective workplace policies and workforce culture. The results contributed to the co-design of a dementia specific training program for home care workers.